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Including results for
uplifting athletes
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0:17
The 2026 Leadership Development Conference is where your passion meets your purpose. Do you want to join a community of student-athletes from across the country who are sharpening their leadership skills, connecting with industry mentors, and learning how to drive real change in the rare disease community? Your platform is powerful. It’s time to use it. The roster is filling up—tap the link in our bio to connect with our staff and find out how to secure your spot. #WeTackleRare | Uplifting Athle
77 views
10 months ago
Facebook
Uplifting Athletes
0:47
When we combine Uplifting Experiences with Lift for Life events, rare disease families get more than a game; they get a room full of people who showed up for them. And the athletes? They get a first hand reminder of why it all matters.This is what community looks like.
118 views
5 months ago
x.com
Uplifting Athletes
1:19
For families in the rare disease community, the daily journey can often feel isolating. Our Uplifting Experiences are designed to change that. Recently, we had the incredible privilege of hosting a rare family at a Green Bay Packers game for a one-of-a-kind game day experience. From the energy of the crowd to the magic of being on the field, these moments provide a much-needed distraction and a source of lasting joy. As one rare parent, Brian, shared: “This is something positive... that’s been t
94 views
9 months ago
Facebook
Uplifting Athletes
0:24
The 2026 Young Investigator Draft is where the fight for cures gets funded. We're drafting 10 rare disease researchers who will receive unrestricted grant funding to accelerate treatments and deliver hope. TICKETS ARE ON SALE NOW and your ticket powers the cure for tomorrow. Click the link in our bio to secure your seat and join the mission. WHEN: January 31, 2026 WHERE: Lincoln Financial Field, Philadelphia, PA #WeTackleRare | Uplifting Athletes
87 views
11 months ago
Facebook
Uplifting Athletes
0:36
𝙇𝙞𝙛𝙩 𝙛𝙤𝙧 𝙇𝙞𝙛𝙚 The Baylor University football team (@bufootball) is dedicated to creating a brighter future for the rare disease community. As an Uplifting Athletes’ chapter they decided to turn an ordinary team workout into an extraordinary opportunity to generate awareness and potential cures for rare diseases. A special thank you to @mastr0dicasa, Michael Allen, and @officialteamnilo for further supporting our mission and cause! | Uplifting Athletes
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Aug 19, 2024
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Uplifting athletes! was an amazing event. Falcons vs Broncos was a fun time ! It’s always a fun time building with community while taking a load off at the same time. We can’t wait to run it back!#sicklecell #scfg #sicklecellawareness #falcons https://t.co/2mAo3cWb7D
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Rob Long was an All-American punter at Syracuse with a promising football career—until a rare brain cancer diagnosis changed everything. Now, as Executive Director of Uplifting Athletes, Rob is changing the game for rare disease patients across the country. In the latest episode of The Health Advocates, Rob opens up about his journey, his purpose, and how he’s amplifying rare disease voices through advocacy, connection, and research funding. 🎧 Listen now via the link in bio. #TheHealthAdvocates
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